May 9, 2017

RA REFLECTION

When you were hired at your first job, I’d bet the farm that most of us never thought about how this was going to affect our social life.  We were happy to just have a job that was going to put cash in our hands, and concentrated how we were going to spend our hard-earned cash!  In essence, this would be considered our first financial plan, what we would do with our pay.  I thought about this because I couldn’t understand why or how I have a financial plan but, no health strategy after being diagnosed with RA.

Things really change when you deal with a chronic disease on a daily basis.  On good days, you may be elated that pain has subsided, but it is difficult to appreciate these days, because you anticipate the return of pain.  It seems like such a waste, wallowing around the time you are feeling great, thinking about what may or may not be ahead.  So I figured I’ll take a lesson from all the organizers, planners, and lifestyle mavens and construct my health strategy.

My life/health strategy is to embrace what I can control and to let go of what I can’t control.  First, I will commit to a health/wellbeing goal to stay active and take medication that may help with the pain.  Secondly, I will plan for times when the disease symptoms are severe.  I will manage my condition day-to-day by eating nutritious food, exercising, and working with a mobility trainer.  My idea of measures of adaptability never included adaptive devises, I will develop new skills and habits that will best work for me.

This all came to light this previous week, experiencing the unpredictable weather, range of temperatures, and torrential downpours.   It was a stressful week, and I knew I had to take steps to manage my condition and maintain some semblance of a healthy lifestyle, while still in pain.  In a nutshell, I’m still learning to adjust my expectations and practice simple self-care.  Have a great week, I intend too!

 

 

Comments

  1. I just found your blog on the Runners with RA page. I was diagnosed with RA 5 months ago and it has been a roller coaster. I returned to my job as a pediatric nurse practitioner this week after a leave of absence while I waited for my symptoms to get under control. I like what you said about how you embrace the good days because you anticipate the return of pain. That sums up how I feel. I felt great most of the week. But Tuesday, I had a lot of aching and swelling. Thursday night, after a very busy day, I was exhausted. You just don’t know what the day is going to bring and I think that is the hardest part of this disease! Glad to find other bloggers who are navigating RA.

    • MaryAnn says:

      Hi Wendy: Thank you for your response, I appreciate your comments. It is true with RA you don’t know what each day holds. I hope you continue to read the blog and find it helpful. If you have any tips or suggestions you would like to share, please do! Mary Ann

  2. Great reflection!!!

  3. valerie fuchs says:

    Hoping you feel better!!! GOOD POST!

  4. Jackie says:

    Way to go Mary Ann. I love the plan and the post.

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